Difference between revisions of "Team:New York City/Human Practices"

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            <div class="container d-flex flex-column flex-md-row justify-content-between">
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            <div class="navbar-brand"><a href="https://2018.igem.org/Team:New_York_City">New York City iGEM</a></div>
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                <div class="navbar-brand"><a href="https://2018.igem.org/Team:New_York_City">New York City iGEM</a></div>
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                            Project
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                                role="button" data-toggle="dropdown" aria-haspopup="true" aria-expanded="false">
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                                Project
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                            </a>
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                            <a class="dropdown-item" href="https://2018.igem.org/Team:New_York_City/HD">What is Huntington's?</a>
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                            <div class="dropdown-menu" aria-labelledby="navbarPR">
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                            <a class="dropdown-item" href="https://2018.igem.org/Team:New_York_City/Description">Description</a>
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                                <a class="dropdown-item" href="https://2018.igem.org/Team:New_York_City/HD">What is
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                            <a class="dropdown-item" href="https://2018.igem.org/Team:New_York_City/Design">Design</a>
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                                    Huntington's?</a>
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                                <a class="dropdown-item" href="https://2018.igem.org/Team:New_York_City/Description">Description</a>
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                    </li>
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                                <a class="dropdown-item" href="https://2018.igem.org/Team:New_York_City/Design">Design</a>
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                            Notebook
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                            <a class="dropdown-item" href="">Coming Soon</a>
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                                Notebook
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                            </a>
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                                <a class="dropdown-item" href="">Coming Soon</a>
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                            Human Practices
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                            <a class="dropdown-item" href="https://2018.igem.org/Team:New_York_City/Human_Practices">Human Practices</a>
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                                role="button" data-toggle="dropdown" aria-haspopup="true" aria-expanded="false">
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                            <a class="dropdown-item" href="https://2018.igem.org/Team:New_York_City/Integrated_Practices">Integrated Practices</a>
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                                Human Practices
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                                <a class="dropdown-item" href="https://2018.igem.org/Team:New_York_City/Human_Practices">Human
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                             <a class="nav-link py-2 d-none d-md-inline-block" href="https://2018.igem.org/Team:New_York_City/Team"
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                                    Practices</a>
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                                id="navbarT">
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                                <a class="dropdown-item" href="https://2018.igem.org/Team:New_York_City/Integrated_Practices">Integrated
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                                    Practices</a>
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                                role="button" data-toggle="dropdown" aria-haspopup="true" aria-expanded="false">
 
                                 Team
 
                                 Team
 
                             </a>
 
                             </a>
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                                <a class="dropdown-item" href="">Coming Soon</a>
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    <h2 align="center">Human Practices</h2>
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        <h2 align="center">Human Practices</h2>
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</div>
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    </div>
  
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<div class="container">
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    <div class="container">
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    <p class="lead">Our team originally focused on developing a modified RNA protein replacement technology for
+
        <p><strong>Introduction to Public Engagement:</strong><br />
−
        Huntington's under the guise that the Huntington's phenotype was caused by the loss of function of the
+
            Huntington’s disease (HD) is a rare and deadly inherited disease, so our team was motivated to develop a
−
        Huntingtin protein due to polyglutame repeats. During our continued research thought the project, we
+
            cure that would attack the root of the problem instead of solely relieving the symptoms. The severity of
−
        discovered that there are 2 copies of HTT and simply up regulating the good copy as long as disease state
+
            the symptoms, along with the late onset of the disease, affects victims both mentally and physically. Thus,
−
        HTT protein is present. Thus we decided it may be better to change the focus of our project from validating
+
            we wanted to spread awareness of HD and our research to both the public and scientific community. We held
−
        toe-hold displacement to expression of human endogenous HTT mRNA so that others could use it do develop RNAi
+
            information sessions within our respective high schools to educate students on HD as well as our ongoing
−
         style therapies. However, after we collaborated with the Huntington's Disease Society of America, we discovered
+
            research. We also participated in New York City and Long Island Teams Hope Walk of HDSA (Huntington’s
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         that the current research in treatment both targeted the endogenous and normal RNA strands, essentially
+
            Disease Society of America) to raise awareness about Huntingtin Diease in public parks along the Hudson
−
        stopping the production of all Huntington protein. Thus, our team is once again focused on validating
+
            River and Long Island park. We also became a member of HDSA National Youth Alliance where we connected with
−
         toehold exchange to affect HTT to replace the mRNA targeted by RNAi with a corrected synthetic mRNA.</p>
+
            other high school and college students who care about Huntington disease and participated in their 2019
−
</div>
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            annual fundraising and event organizing committee meetings and conference calls. Through direct outreach to
−
<br/>
+
            institutions and educational communities such as our schools, the colleges/universities in our city, and
−
<div class="container" align="center">
+
            affiliated organizations, we hoped to inspire further experimentation and interest in HD.</p>
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    <div class="row" align="center">
+
 
−
        <div class="col-sm-3">
+
        <p><strong>September 15 2018:</strong><br />
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        </div>
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            New York City iGEM Team started fundraising for Huntington's Disease Society of America Team Hope Walk in
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        <div class="col-sm-2">
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            New York City and joined New York City HDSA Team Hope on Hudson River Park - River 46 on Saturday September
−
            <a href="https://www.facebook.com/HDResolution/"><i class="fab fa-facebook-f display-4"></i></a>
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            15.</p>
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        </div>
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         <img src="https://static.igem.org/mediawiki/2018/a/a4/T--New_York_City--hdsa.png" />
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        <p><a href="https://hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.participant&participantID=48528">Link</a>
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            <a href="https://twitter.com/HDNYC_iGEM"><i class="fab fa-twitter display-4"></i></a>
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        </p>
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        </div>
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        <div class="col-sm-2">
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        <p><strong>September 11, 2018:</strong><br />
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            <a href="https://www.instagram.com/nyc_igem/"><i class="fab fa-instagram display-4"></i></a>
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            New York City iGEM Team registered for HSG 2018: Unlocking HD Nov. 8-10, 2018, Hotel ZaZa, Museum District,
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        </div>
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            Houston, Texas
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        <div class="col-sm-3">
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            25th Anniversary Celebration
 +
 
 +
            Over the past 20 years, the Huntington Study Group (HSG) has hosted an annual, internationally recognized
 +
            forum for training and education of Huntington disease (HD) researchers and for presentation of new
 +
            research findings and treatments to the worldwide community, plus much more…</p>
 +
        <img src="https://static.igem.org/mediawiki/2018/a/a8/T--New_York_City--hgsa.png" />
 +
        <p><a href="https://huntingtonstudygroup.org/about/our-annual-meeting/">Link</a> </p>
 +
 
 +
        <p><strong>September 9 2018:</strong><br />
 +
            New York City iGEM Team is excited to volunteer and support Huntington's Disease Society of America NY Team
 +
            Hope Walk in Long Island NY tomorrow Sunday Sep 9.</p>
 +
         <p><a href="https://hdsa.donordrive.com/index.cfm?fuseaction=donordrive.participant&participantID=48526">Link</a>
 +
        </p>
 +
 
 +
        <p><strong>September 8 2018:</strong><br />
 +
            New York City iGEM Team joined as a member to Huntington Study Group, a world leader in facilitating
 +
            high-quality clinical research trials and studies in Huntington disease (HD). We have the first and largest
 +
            HD clinical research network of over 400 active and compassionate investigators, coordinators, scientists
 +
            and HD experts at over 120 HSG Credentialed Research Sites across the globe dedicated to seeking treatments
 +
            that make a difference and improving the quality of life and outcomes for families affected by HD.</p>
 +
         <img src="https://static.igem.org/mediawiki/2018/7/77/T--New_York_City--hsg.png" />
 +
        <p><a href="https://huntingtonstudygroup.org/">Link</a> </p>
 +
 
 +
        <p><strong>August 20, 2018</strong><br />
 +
            New York City iGEM Team joined Steptember campaign of Cerebral Palsy Alliance Research Foundation a non
 +
            profit organization to fund the world's best research to treat, prevent and ultimately find a cure for
 +
            cerebral palsy (a generic brain disorder)</p>
 +
        <img src="https://static.igem.org/mediawiki/2018/3/3e/T--New_York_City--stepb.png" />
 +
        <p> <a href="https://www.steptember.us/">Link</a> </p>
 +
    </div>
 +
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    <div class="container" align="center">
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                <a href="https://www.facebook.com/HDResolution/"><i class="fab fa-facebook-f display-4"></i></a>
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                <a href="https://twitter.com/HDNYC_iGEM"><i class="fab fa-twitter display-4"></i></a>
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Revision as of 21:35, 10 October 2018

Human Practices

Introduction to Public Engagement:
Huntington’s disease (HD) is a rare and deadly inherited disease, so our team was motivated to develop a cure that would attack the root of the problem instead of solely relieving the symptoms. The severity of the symptoms, along with the late onset of the disease, affects victims both mentally and physically. Thus, we wanted to spread awareness of HD and our research to both the public and scientific community. We held information sessions within our respective high schools to educate students on HD as well as our ongoing research. We also participated in New York City and Long Island Teams Hope Walk of HDSA (Huntington’s Disease Society of America) to raise awareness about Huntingtin Diease in public parks along the Hudson River and Long Island park. We also became a member of HDSA National Youth Alliance where we connected with other high school and college students who care about Huntington disease and participated in their 2019 annual fundraising and event organizing committee meetings and conference calls. Through direct outreach to institutions and educational communities such as our schools, the colleges/universities in our city, and affiliated organizations, we hoped to inspire further experimentation and interest in HD.

September 15 2018:
New York City iGEM Team started fundraising for Huntington's Disease Society of America Team Hope Walk in New York City and joined New York City HDSA Team Hope on Hudson River Park - River 46 on Saturday September 15.

Link

September 11, 2018:
New York City iGEM Team registered for HSG 2018: Unlocking HD Nov. 8-10, 2018, Hotel ZaZa, Museum District, Houston, Texas 25th Anniversary Celebration Over the past 20 years, the Huntington Study Group (HSG) has hosted an annual, internationally recognized forum for training and education of Huntington disease (HD) researchers and for presentation of new research findings and treatments to the worldwide community, plus much more…

Link

September 9 2018:
New York City iGEM Team is excited to volunteer and support Huntington's Disease Society of America NY Team Hope Walk in Long Island NY tomorrow Sunday Sep 9.

Link

September 8 2018:
New York City iGEM Team joined as a member to Huntington Study Group, a world leader in facilitating high-quality clinical research trials and studies in Huntington disease (HD). We have the first and largest HD clinical research network of over 400 active and compassionate investigators, coordinators, scientists and HD experts at over 120 HSG Credentialed Research Sites across the globe dedicated to seeking treatments that make a difference and improving the quality of life and outcomes for families affected by HD.

Link

August 20, 2018
New York City iGEM Team joined Steptember campaign of Cerebral Palsy Alliance Research Foundation a non profit organization to fund the world's best research to treat, prevent and ultimately find a cure for cerebral palsy (a generic brain disorder)

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