Integrated Practices
Huntington’s disease (HD) is a rare and deadly inherited disease, so our team was motivated to develop a cure that would attack the root of the problem instead of solely relieving the symptoms. The severity of the symptoms, along with the late onset of the disease, affects victims both mentally and physically. Thus, we wanted to spread awareness of HD and our research to both the public and scientific community. We held information sessions within our respective high schools to educate students on HD as well as our ongoing research. We also participated in New York City and Long Island Teams Hope Walk of HDSA (Huntington’s Disease Society of America) to raise awareness about Huntingtin Diease in public parks along the Hudson River and Long Island park. We also became a member of HDSA National Youth Alliance where we connected with other high school and college students who care about Huntington disease and participated in their 2019 annual fundraising and event organizing committee meetings and conference calls. Through direct outreach to institutions and educational communities such as our schools, the colleges/universities in our city, and affiliated organizations, we hoped to inspire further experimentation and interest in HD.